Monday, June 1, 2009

When you're down, and troubled....

So I have James Taylor's greatest hits. Call me an old folkie, but he soothes the soul. And once in a while, when I am feeling a little blue, if I play his songs, I start bawling. Today is one of those days.

I watched little Eli try to play with neighbor kids yesterday and the night before last. Epic FAIL.

The first was a little neighbor girl who was riding her bike up and down the walk in front of our house. She's a nice little girl, two years younger than Eli chronologically. However, socially, she is light years beyond him. She already had a little playmate over, and Eli naturally gravitated toward them. It began nicely enough, but then an argument ensued over who was older. Eli is 7 and the little girl is 5. Obviously he is older, but the other little girl present is apparently 8, which is what led to the big argument. I am not sure what exactly was said, but it escalated to the point that I had to separate Eli from them. He was very upset.

The next was a small group of kids playing with the toddler next door and a couple of parents standing on the sidewalk supervising. Instead of turn taking, Eli decided to take the ball and roll himself around it, screaming and kicking when anyone tried to take it from him. When it became apparent that even the parents were too afraid to just TAKE it, I intervened, distracting him with the promise of yanking out that dangling tooth on the bottom. He instantly forgot all the drama, but the scene is etched indelibly in my mind. The parents sort of hovering, looking dismayed and nervous--the kids eyeing him with suspicion.

Last spring, I bit the bullet and sent out a mass email to all the South Side parents on the mailing list practically begging for someone, anyone to give Eli a chance. I explained that he has autism, described him and his symptoms, and said that I would love for him to have the opportunity to make some friends. Well, I got a ton of responses to the email--moms telling me they understood, would love to have their child play with Eli, etc. Guess how many actual playdates came out of it. One. Just one. A big thanks to all those who responded, but never followed through. It seems as though people like to portray themselves as understanding and tolerant, but when the chips are down, they don't want my kid around theirs.

I don't get it. He is not a violent child. He will occasionally hit, but so do most other kids, especially 7 year old boys. He is very talkative and has a fantastic imagination. He likes Legos and tends to get possessive over his creations, getting upset if someone breaks them--so do other 7 year old boys. He is compassionate--gives other kids hugs and tissues if they are crying. He loves plants--identifying irises and peonies as we pass by gardens on walks or drives. He is friendly, saying hello and asking "What are you up to today?" of the neighborhood when we walk the dogs.

So what the hell is he doing that is soooo wrong?!

Today is just a bad day, I guess. I have plans to take treat bags and popsicles to his first grade class to celebrate his birthday, since it falls in July and he wouldn't get this opportunity otherwise. To tell you the truth, it's a sham. I spent money and time trying to get these kids to say "Hey, Eli isn't so bad after all" when I know that it's just a waste. They have their attitudes and opinions of him set already. A couple of children in the class have already appointed themselves his tattletales, reporting every single tiny thing he does to the teacher. I kind of want to say to those kids, "Sorry! No treat for you!"

I finally picked up the copy of Since We're Friends, an autism picture book. In the book, the little autistic boy has a good friend who is understanding and defends his friend in social situations. He helps him, since they're friends. But Eli doesn't have even one friend to rely on. Not one.

So now I am off to listen to Sweet Baby James and You've Got a Friend and cry for a while. Not productive, not proactive, but self indulgent and at this point, possibly cathartic.

6 comments:

  1. Several years ago, I watched in angst as Deirdre (who was 8 at the time) struggled to play with the other kids at a school dance. Deirdre stood there as the other kids were being, well, kids.
    I was heart-broken.
    7 years later, Deirdre has more friends than I can count. She is active in church, choir, orchestra and Anime'.
    Suddenly, this little non-social, awkward child blossomed into a social young woman.
    I also saw this happen to Erin in 5th grade and little Patrick, just this year.
    These guys have friends over all the time and are asked to "play" often.

    I know this will happen with Eli also.
    My advice, if you want it, don't sweat the ignorance of others. They will see Eli for the wonderful child he is. Just keep him in the loop...

    Love,
    Jeanette

    ReplyDelete
  2. I wish I shared your optimism, really I do. It's a small town--word gets around.

    ReplyDelete
  3. hey babe - Ugh, that makes me sad that people behave in that manner & allow their kids to do the same. I'm fiercely protective of my nieces, nephews & friends' kids - the Mama Bear instinct is the most fierce of all. As it should be. i'm feeling kinda blue due to some poor behavior from long time friends - seems as tho some things never change - even in your 40's. it's rainy and cold here today and it matches my mood. now reading your blog and i'm feeling blue for you too (and rhyming about it, apparently) i agree with you with regard to people portraying themselves as understanding & tolerant -- when it's convenient and others are watching. but i'm also trying to tell myself that the behavior around me is also a gut check for me - to make sure I'M not behaving this way, even for a tiny second. I'm blathering on here but figured you would appreciate feedback, even from this old single/divorced hen who has no kids.. ;-) hang tough, chica.

    ReplyDelete
  4. Thanks, Mia. I usually do hang tough, but sometimes it seems overwhelming.
    I need to remember to keep things in perspective and that Eli is really a pretty happy kid--a lot of the time he doesn't even want to play with another kid.
    A good friend once told me to remember that what makes one person happy may not appeal to the next. Just because I want him to have friends doesn't mean it's what he wants.

    ReplyDelete
  5. Ellie doesn't have any "friends" either, although neighborhood kids like to have her around and she obviously derives enjoyment from being around them. We've never been invited to a playdate from anyone at her school, even the other kids with special needs. I feel just as pained as you do for Eli when I see her playing by herself on the playground. I don't know what I'll do with her when she's older, 5, 6, and her younger sisters are passing her by socially. So I hear ya, babe. Believe me.

    ReplyDelete
  6. You have my empathy. For more years than I can count, my oldest, who will be 20 this year, had NO friends, despite the effort we made to make this happen. He still has no neurotypical friends, but he has plenty of friends now at the day center he attends for disabled people, and even has a girlfriend.

    We fight now for our youngest two to have friends, and while we have had no real success at their school (they do have kids who will occassionally play with them, usually at the request of the teacher), I have a good friend who brings her sons over every Saturday for an extended playdate so that the girls can play and work on social skills.

    It hurts to see our children rejected by their "peers" but I believe that although we may have to work harder to make it happen, we can find a place for each of our children to be accepted and appreciated. It might take some bribing, some extra effort like throwing neighborhood parties, always taking the initiative, or finding a special needs group so that we have less battles. I totally get the crying, though. Hugs.

    ReplyDelete